Yesterday we got very devastating news back from Jacob's kidney consultation. In short, he has an unusual congenital kidney syndrome that is very serious. He will have surgery probably today or, if not, tomorrow to get a biopsy of his kidney tissue to determine if the syndrome is the result of a genetic defect or of some potent medication he took to try to close his duct (which didn't work and thus he had the heart surgery). Obviously we're hoping it's the latter, as anything genetic isn't really treatable and would potentially affect Sawyer and future kids as well. But either way, the best case scenario is a very long, slow, and difficult road. We feel weary, scared, and disappointed as we anticipate another procedure as well as the outcome. We covet your prayers, especially for Jacob's safety and healing.
I will have more info once we meet with the kidney specialist again today and also when we know the results of the biopsy. For future updates, instead of sending out emails, we now have a blog that you can check or subscribe to: www.regiertwins.blogspot.com
Thanks to Meredith for setting it up and maintaining it.
In Him,
Brad and Arja
5 comments:
So sorry to hear of potentially hard news but we are still praying for a reversible problem. Thanks for the blog, Meredith. This will be a great way to keep up and pray appropriately. Matt 19:25"With man this is impossible, but with God all things are possible."
Uncle Tom
Praying, Praying, Praying.
i am so grateful that yall have this blog now! pls fill it up with as much news and pictures as you have the energy to do.
i can only imagine how weary your hearts are after this news..praying that our amazing God..our loving father..will hold you..encourage you..and walk nearer than ever thru this process with jacob..even swollen he is a precious doll...all my love, marybeth for us both
Love the new blog. Praying for Jacob right now!!!
Dear Friends,
Zachary prayed tonight: "God, I pray that baby Jacob would get better and help Sawyer not to get the thing that Jacob has and to keep growing".
We are praying for MIRACULOUS HEALING OF JACOB'S KIDNEYS because Our God is a GREAT BIG GOD and He Alone is The Great Physician. We wait in expectation of that miracle!
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